Here We Go Again.

In December I had an appointment with my neurosurgeon in Charlotte and since it was the last day of classes here and was a 7 hour drive, I decided to cancel it and find a neurosurgeon here in Gainesville.  I didn’t make this decision lightly and I looked up all sorts of things about the awesome program here and I asked around to a number of people.  I saw my new neurosurgeon for the first time on Valentine’s Day (ha!).  He ordered an MRI to be done the Monday after our spring break trip to Costa Rica (March 11th).  On Tuesday, March 19th while Mike and I ate lunch with Evy, the nurse called and said that the doctor recommended surgery.  She then set an appointment for me to talk to him about this for today, March 28th.

Mike and I of course called our parents.  I didn’t want to say anything about this before we knew anything, but needless to say, we’ve been pretty distracted this past week and because I try to be a reasonably transparent person, it was hard to preach on Palm Sunday or for either of us to function without a twinge of something always in the background.  My parents came to visit last night so that Mom could go with us to the appointment and Dad being the great MacMac that he is, could hang out with the kids this morning since they’re on spring break.

Three years have passed since the first surgery.  To review, my doctor in Charlotte removed what he could of the tumor but left a strip near the motor cortex of the brain.  The type of tumor I have is an oligodendroglioma and very thankfully it’s a grade II (low grade).  At the time, research and common practice said that you take a watch and wait perspective and treat symptoms.  Now, research says that you resect as much as you can of the tumor so that it does not increase in grade.  They will use computer guidance to make sure that they are as precise as possible in removing as much as they can of the tumor that remains.  All of the risks associated with brain surgery are still at play here (duh.), but even more than that, because this is on my motor cortex, there could be temporary weakness in my right arm, hand and face.  As he said, scenario A is much like the first surgery – I come in on Friday and have surgery, I go home on Sunday, and I go back to work on Wednesday (this is also because I’m a crazy person that likes to work – yes, I know).  Scenario B is I go into surgery on Friday, hopefully still leave on Sunday depending on some things, go back to work in two weeks, and then possibly do physical therapy and rehab for a month.  If removing as much of the tumor as possible gives me a higher means of this not turning into something worse, I’m willing to risk either scenario.  The doctor’s suggestion is to take the “earliest elective opportunity” to do the surgery.

I’ve decided to do the surgery in May – most likely either May 10th or May 17th.  What does this mean for our family?  The kids were 1 and just turning 3 when the first surgery happened so they thought Mommy was on a trip of some sort.  They’re 4 and 5 now so we’ll be handling things a little differently.  They’ll still be in school so that should help.  I am blessed with an incredible extended family….and in essence I consider y’all a part of that as well.  Mike has been an absolute rock in all of this and I can’t begin to thank him for living out the weight of our vows every day.  The irony of asking him today – do you want to have the surgery around our 11th anniversary (May 11th) or around your 34th birthday (May 16th)?  I know that God is with us and will provide – whether that’s within the surgery, recovery, sanity, financially or us trying to squeeze in two more days at Disney before June 6th when our passes expire =0).  I’m also looking at the beginning of May so that I can be present for all of the end of semester fun, but before things ramp back up for summer.  I didn’t plan on a surgery during my first year here in Gainesville, but I know that there’s an amazing staff, student leaders and board here and we’ll be good to go.  As always, I’m pretty open with questions – so if you have one, ask me.  I also tend to use the blog to process and answer things as I can. (Don’t be afraid.  I’m not “broken” or an invalid, and I’m still the same person.  Human as can be, but trying to figure it out….so ask, don’t just wonder.)

As soon as I get the actual date of the surgery, I’ll definitely post it and I will hugely appreciate all of your prayers!

So all that to say, I don’t have any big actual blog “reflection” tonight.  We just completed the Maundy Thursday service and I’m pretty spent at this point, which I guess is just about right with Good Friday coming tomorrow.  I am increasingly struck this Easter season that there’s no fast forward button between Palm Sunday with the Hosannas and Easter.  I also appreciated a song that my parent’s sent me when I told them this last week.  It’s Tenth Avenue North’s “Worn.”  Hope that during this Holy Week we are reminded of our redemption, peace and hope in Christ in the midst of the sometimes dark despair.

For those visual people out there that want to pray over an image….rock on.

Image

28 thoughts on “Here We Go Again.

  1. The neat thing about the motor cortex (ok, the brain in general) is that, if there is weakness, the brain is awesome at adapting for that stuff. And, I’m a total brain geek, so I really wish I could do your PT 🙂 I do know a PT at Shands Gainesville, so let me know if you want her name 🙂 Will be praying for you, love!!

  2. Wow – so sorry to hear that the time has come around so quickly for more surgery, Narcie. I know that the timing isn’t the best with your new position there in Gainesville, but rest assured that all who prayed you through the last time will do the same this time – and you have the Gators joining in, too. Prayers for strength and peace of mind, heart and spirit as you prepare for this surgery.

  3. Please know Joseph and I have you and your family in our prayers Narcie. We also will ask for prayer in our congregations and put the Connection to work! Have a blessed Easter!

  4. Narcie, prayers going up daily! God has made you such a strong woman and will see you through this once again!

  5. Narcie and Mike,
    Please know that you are in our thoughts and prayers.
    We miss you at St. John’s.
    Stay strong!
    Tom and Karen Vinson

  6. Praying for you and your family Narcie. God will see you thru this and all of us in the Lydia community will keep you in our thoughts and prayers. Sending hugs your way….

  7. I will keep you and your family in my prayers! You are loved and have a lot of prayer warriors in South Carolina. Love you!

  8. Along with all your ‘family’ at St. John’s, your family and friends everywhere, we will again pray you through this surgery. We love you and miss you.

  9. Narcie, I hate to hear this news. Cyndi, Kirby and I will be praying for you. I will lift you up on our community prayers this Sunday.

  10. Narcie, we have only meet through your Dad, but I feel like I have known you forever. I serve at Woodland and we will raise up you and your family, as well as all the medical personal up in continuous prayer and keep the college students at Winthrop up to date. Simply said, “WE LOVE YOU.” Agape, Eddie Usher

  11. Dear Precious Narcie,
    You, Mike, the children, and your parents along with the nurses and doctors will be in our thoughts and prayers.
    Love and Hugs from the Rock Hill Zeiglers.

  12. Narcie and Mike,
    I am so very sorry to hear this news. Please know that I am praying for both of you as you face this disease. Remember the words from Revelation…”there is a place of no more tears, no more death, no more sickness.” Jesus has won the victory over all things, and we pray he will have victory in this situation as well.

  13. Narcie, sorry to hear this news, we know a living God, he is good and merciful,as we enter Holy week new beginnings comes to mind, I know it will be a positive new beginning for you and you wonderful family, Prayers will go up for you and you family, Happy Easter.

    Your Plesant Grove UMC family

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