Posted in Health, Natalie Grant, Tumor

Hurricane

I have my first MRI post-surgery tomorrow at 9 am. The doctor is going to read it at our appointment at 1 pm. I’m not expecting that the tumor will grow back overnight. Not by any means. And I’m sure the doctor’s visit will be anticlimactic – but only in a GREAT, AWESOME, GOD way.

This song “Hurricane” by Natalie Grant has really struck me lately.

Posted in Campus Ministry, Movies, Tumor

Getting Back

I’ve been preaching for four Sundays now.  Reading from a manuscript.  Sunday was the first Sunday I had the nerve to do the communion liturgy and benediction extemporaneously.  I bet it was the shortest communion extrapolation ever!  I’ve been frustrated with how slow a process it is.  I came home late in the afternoon after having lunch with the students and something prompted me to reach for The Legend of Bagger Vance among the collection of our DVD’s.  It was a God thing.  I needed it.  And God knew it.

 

“Inside each and every one of us is one true authentic swing. Something that we were born with. Something that’s ours and ours alone. Something that can’t be taught to you or learned. Something that got to be remembered. Over time the world can rob us of that swing. It can be buried inside us in the woulda, coulda, shoulda’s. Some people forget what their swing was like.”

 

“You know I can’t quit.”
” I know. Just making sure you know it too.”

 

“Look at his practice swing. Almost as if he’s searching for something. And then he finds it. He settles himself right in the middle of it. Feel that focus. He’s got a lot of shots he can choose from….But there’s only one shot that’s his. Authentic shot. And that shot is going to choose him. There’s a perfect shot out there trying to find each and every one of us. What we got to do is get ourselves out of it’s way and let it choose us.”

 

“I can’t.”

“Yes, you can. But you ain’t alone. I’m right here with you. I’ve been here all along. Now play the game. Your game. The one that only you was meant to play. The one that was given to you when you come into this world. You ready? Take your stance. Strike that ball. Don’t hold nothing back. Give it everything. Now’s the time. Let yourself remember. Remember your swing.”

 

It was like my own personal pep talk.  I need to be me.  I need to trust my own voice.  I need to be centered on God and all that comes with it.  It reminds me of the old Siler’s Bald song Getting Back.  With the lines like, “I crawl, I run, as you wait for me//With open arms, there you stand//take my heart in your hands//I’m going to keep my eyes on you//I pray this life you’ll see me through.”

So there’s progress.  I was able to do the chinese balls with my right hand.  I wasn’t able to do that a month ago, so I dreaded it when my occupational therapist placed them before me.  But I was pleasantly surprised that I could do it!

It still terrifies me to stand in the pulpit.  But I know I’m not alone.  May my nervousness draw me closer to God.  This is my prayer.

Thanks for all of yours!  I walk this journey with all of you by my side and a great cloud of witnesses looking on.

Posted in Guidance, Healing, Health, perseverance, Tumor

Halfway Point

So I’m halfway through the radiation treatments and I have had very little side effects – occasional nausea, hair loss, and headaches.  But I’ve got some great wigs in a variety of colors!

This song came on the radio, as I was heading into radiation.  The chorus

“You’re the one who conquers giants
You’re the one who calls out kings
You shut the mouths of lions
You tell the dead to breathe
You’re the one who walks through fire
You take the orphan’s hand
You are the one Messiah
You are I am
You are I am”

We certainly serve an audacious God.

http://www.youtube.com/watch?v=2JI4CPfuLW0

The lectionary text for this past week, shows Jesus casting out demons.  I think of the Florence and the Machine song “Shake it Off” with the lyrics “Every demon wants his pound of flesh….And it’s hard to dance with a devil on your back…So shake him off”

http://www.youtube.com/watch?v=L0cjxmMDNFo

We serve an audacious God.  The Upper Room devotional had this verse from Psalm 62:8 this morning, “Trust in [God] at all times, you people; pour out your hearts to him, for God is our refuge.”  These are my reminders that God is faithful to deliver and no matter how my foolish pride may get in the way, I can always pour out my heart to God.

Posted in Tumor

This Too Shall Pass

The surgery was successful.  The doctor said he got it all.  The speech is improving and the hand is almost back to normal.  Answered prayers!

Mike got a call from the radiologist on Monday to say that it upgraded to a malignant tumor.  Grade III.  Continued prayers!

We met with the radiation oncologist today.  The oncologist explained that the surgery was successful, but the likelihood of recurrence is pretty good.  I will start radiation and chemo on Thursday, 5 days a week for 6 weeks.  It will be 20-30 minutes a day.  This will be preventative with minimal side effects, the worst of which is described as fatigue.  They said I would have temporary hair loss randomly and permanent hair loss at the site of the tumor.  But during treatment I will still be in the office, and rocking my speech and occupational therapy.   

Change of summer plans.  

At least I get to see the kids more. 

Posted in Community, Health, Love, Prayer, Providence, Tumor, Worship

LOVE – Songs of my Soul for Now

In an hour I go to the hospital for my second brain surgery and it feels super surreal to write that.  I wanted to post a quick blog before I go to say thank you to everyone who is praying and who has been supporting us.  We can feel your love and the community surrounding us!

I spent this past week with 30+ students from Gator Wesley touring around the state of Florida doing our Spring Tour – singing, dancing, rocking out, reading scripture and so much more.  There’s a song that they sing in one of the sets (and I love the mash up that they do) called “Set a Fire” by United Pursuit Band and one of the lines says, “There’s no place I’d rather be…but here in Your love…”  I’ve felt that from each of you.

Campus ministry is this crazy special place where things intersect – struggles, fears, hopes, dreams, silly Vine videos, lots of laughter, and experiences that both challenge and inspire. The students this week have inspired the heck out of me.  I’ve been ministered to in their music and their passion and their faith, and even more than that in their zest for life!  There weren’t many stops during this tour where I didn’t feel moved in some way and though I couldn’t figure out how to share that with them without becoming a blubbering hot mess, I want to let them know how special this week was for me.  Even the trampolines.  And the cold water of the spring when knocked off a raft.

Two of the songs that they’ve been singing are two favorites of mine that I’ve been holding dear over the past few weeks.  They didn’t know that when they picked the songs how much they have been resonating with me and yet again, I know that God is weaving all of this together in mighty ways.  The first is Meredith Andrews’ “Not for a Moment.”

And the second is by an amazing band that we hosted here at Gator Wesley called Bellarive.  It’s their song, “Taste of Eternity.”

These have been the songs of my heart.  Worship taps into a place that breaks down the barriers that we place.  It digs in between the walls that we’ve built to protect ourselves and the layers of stress and muck that this world provides.  May the scales on our hearts and our eyes be removed that we may see God more clearly and know God more fully, as God draws us to God’s self.  I know that no matter what happens today, I know that I am God’s and God is ever in the midst working things together for good.

Y’all have humbled me speechless with all of your texts, facebook messages, tweets, and cards and I hope that each of you feels the love, hugs, fist pumps, and high fives that we have for you!  Thanks for being on this journey with me.

Much love!

Cheers to a new haircut!

Grace and Peace,

Narcie

Posted in Anger, Faith, Frustration, Grief, Life, Tumor

The Anger Stage

So it’s there.  A little bit after the parental units, but nonetheless, the anger stage is in the house.  I, like most of you, know about the stages of grief and it’s almost worse that I know this and realize this and can clinically say, why of course, Narcie Jeter, what you are experiencing is a quite substantial dose of the anger and sadness stages of grief.

Lord knows why it took me so long and why I went into survival, defuse the situation, and keep bouncing along mode except for the fact that I just really don’t want to deal with this.  I really don’t want to think about surgery again.  I really don’t want to show the kids the scar from the last time and let them know this is all going to be okay.  I really don’t want to feel so freaking ticked off and frustrated and distracted and weepy.  Weepy.  And not in a nice, cute crying way, but watching old episodes of Dawson’s Creek and crying like a nutcase.

I don’t really know how to make this feeling go away so besides the Dawson’s Creek marathon which is strangely always comforting (nutcase, I told you), I’m trying to blog it out.  Maybe if I articulate whatever this is…since I don’t really have a punching bag and I probably shouldn’t throw things against the wall so late at night.

I don’t actually know what I want.

I don’t know if there’s an answer.

I don’t even know if there’s a question.

Things I know:  I love my family.  I trust God.  I know there are many, many people praying.  I appreciate that greatly.  I love what I do – all of it – silly, serious, and in between.  I am tired.  I am worried.  I am scared.  I am loved and cherished by an amazing man who is more than I ever deserve or imagined.  I have done this before and I know all will be fine and it’s a great doctor and facility.  I can’t decide if this is a big deal or not a big deal or if it’s just normal, which is weird and not quite right.  I’m already wondering about the next surgery or what will happen…  I have the two silliest, sweetest, most unique and precious and precocious children imaginable and I swing between the hope that they may never know anything about this because I wish I could control things and realizing that this isn’t just my story but our story.  I realize that there are a heck of a lot of people dealing with things more awful and challenging and I sometimes feel whiny and weak for even articulating this.

And yet.  When I start typing and I stop feeling the waves of anger for a bit and I stop crying along to “I Don’t Wanna Wait” like a sad sack, I know that God is carrying me and holding me each step of the way, which ironically in some ways makes me cry more.  And for the record, I’m not writing that as a pastor and I don’t care a hill of beans if anyone reads this, but it’s just good to feel and know that.  Even as silly as that may seem to some.

Thanks for being on this journey.  Thanks for praying.  Even if I don’t always answer the emails, comments, facebooks, fast enough or at all, know that I appreciate them and I read them.  They help that “held” feeling when it’s denial, anger, sadness, and yuck city.  Love you all.  Especially my crazy WNWers that would let me share my Dawson’s obsession.  And if any of you reading this make fun of me for my silly, trashy, and immature tv watching….you’re going to get it.  (I kid.  Mostly.)

***I also realize that I write plenty of run-on, stream of consciousness sentences, and I, nor the English major inside of me, actually cares.  So ha!

Posted in Health, Tumor

Surgery Date

It’s official.

Surgery will be on May 10th and pre-op on May 3rd.

Thanks for y’all’s prayers, your comments on the blog, your comments on facebook and all of the messages!  Much love to each of you.

All of us greatly appreciate it.  As I know more, I’ll let you know.  As I process more, I’ll try to post.  The in between time makes this a bit surreal but I know that God is with us.  I know there are quotes out there like “Never trust quotes posted on the internet” – Abraham Lincoln, and I don’t know if this one is completely true or not, but as my uncle Carlee would quote John Wesley saying, “The best of all is, God is with us.”

Posted in Family, Health, Holy Week, Mommy, Support, Thankful, Trust, Tumor, Unexpected

Here We Go Again.

In December I had an appointment with my neurosurgeon in Charlotte and since it was the last day of classes here and was a 7 hour drive, I decided to cancel it and find a neurosurgeon here in Gainesville.  I didn’t make this decision lightly and I looked up all sorts of things about the awesome program here and I asked around to a number of people.  I saw my new neurosurgeon for the first time on Valentine’s Day (ha!).  He ordered an MRI to be done the Monday after our spring break trip to Costa Rica (March 11th).  On Tuesday, March 19th while Mike and I ate lunch with Evy, the nurse called and said that the doctor recommended surgery.  She then set an appointment for me to talk to him about this for today, March 28th.

Mike and I of course called our parents.  I didn’t want to say anything about this before we knew anything, but needless to say, we’ve been pretty distracted this past week and because I try to be a reasonably transparent person, it was hard to preach on Palm Sunday or for either of us to function without a twinge of something always in the background.  My parents came to visit last night so that Mom could go with us to the appointment and Dad being the great MacMac that he is, could hang out with the kids this morning since they’re on spring break.

Three years have passed since the first surgery.  To review, my doctor in Charlotte removed what he could of the tumor but left a strip near the motor cortex of the brain.  The type of tumor I have is an oligodendroglioma and very thankfully it’s a grade II (low grade).  At the time, research and common practice said that you take a watch and wait perspective and treat symptoms.  Now, research says that you resect as much as you can of the tumor so that it does not increase in grade.  They will use computer guidance to make sure that they are as precise as possible in removing as much as they can of the tumor that remains.  All of the risks associated with brain surgery are still at play here (duh.), but even more than that, because this is on my motor cortex, there could be temporary weakness in my right arm, hand and face.  As he said, scenario A is much like the first surgery – I come in on Friday and have surgery, I go home on Sunday, and I go back to work on Wednesday (this is also because I’m a crazy person that likes to work – yes, I know).  Scenario B is I go into surgery on Friday, hopefully still leave on Sunday depending on some things, go back to work in two weeks, and then possibly do physical therapy and rehab for a month.  If removing as much of the tumor as possible gives me a higher means of this not turning into something worse, I’m willing to risk either scenario.  The doctor’s suggestion is to take the “earliest elective opportunity” to do the surgery.

I’ve decided to do the surgery in May – most likely either May 10th or May 17th.  What does this mean for our family?  The kids were 1 and just turning 3 when the first surgery happened so they thought Mommy was on a trip of some sort.  They’re 4 and 5 now so we’ll be handling things a little differently.  They’ll still be in school so that should help.  I am blessed with an incredible extended family….and in essence I consider y’all a part of that as well.  Mike has been an absolute rock in all of this and I can’t begin to thank him for living out the weight of our vows every day.  The irony of asking him today – do you want to have the surgery around our 11th anniversary (May 11th) or around your 34th birthday (May 16th)?  I know that God is with us and will provide – whether that’s within the surgery, recovery, sanity, financially or us trying to squeeze in two more days at Disney before June 6th when our passes expire =0).  I’m also looking at the beginning of May so that I can be present for all of the end of semester fun, but before things ramp back up for summer.  I didn’t plan on a surgery during my first year here in Gainesville, but I know that there’s an amazing staff, student leaders and board here and we’ll be good to go.  As always, I’m pretty open with questions – so if you have one, ask me.  I also tend to use the blog to process and answer things as I can. (Don’t be afraid.  I’m not “broken” or an invalid, and I’m still the same person.  Human as can be, but trying to figure it out….so ask, don’t just wonder.)

As soon as I get the actual date of the surgery, I’ll definitely post it and I will hugely appreciate all of your prayers!

So all that to say, I don’t have any big actual blog “reflection” tonight.  We just completed the Maundy Thursday service and I’m pretty spent at this point, which I guess is just about right with Good Friday coming tomorrow.  I am increasingly struck this Easter season that there’s no fast forward button between Palm Sunday with the Hosannas and Easter.  I also appreciated a song that my parent’s sent me when I told them this last week.  It’s Tenth Avenue North’s “Worn.”  Hope that during this Holy Week we are reminded of our redemption, peace and hope in Christ in the midst of the sometimes dark despair.

For those visual people out there that want to pray over an image….rock on.

Image

Posted in Death, Dreams, Future, God, Health, Impossible, Romans 4, Tired, Trust, Tumor

A little too much…

I don’t know why but it’s been a hard couple of days in thinking about brain tumor land. Don’t worry nothing new – no change. This sounds so morbid, but on Saturday night I dreamed that I died – literally – and then went to heaven. Let’s just say in my dream, heaven was not what I expected. The pros – my three cats greeted me at the entrance. Who knows what that means…could be because two weeks ago I found out that the oldest cat Pug is in the beginning stages of kidney and renal failure or then again it could be because they greet me at the door all the time and any time they have thrown up a hair ball somewhere or made another mess Mike likes to threaten them. =0)

I don’t remember a ton about the dream or how things were laid out or anything and I am not at all saying that this is what it’s like or any sort of premonition at all (is that enough disclaimers there?), but I spent the dream waiting for people to get there. Now I know that heaven is heaven and duh we’re not going to be miserable sitting around swinging our legs back and forth waiting for the rest of our family to get there, but that was the dream. It sucked. Royally.

I didn’t really tell anyone about it until yesterday primarily because I had been thinking about it a lot and I know that if I say something out loud or if I write about it, in some crazy way, that helps me to process and make sense of things.

And then brain tumor stuff has just been popping up everywhere – wonderful friends checking in, a minister on the conference prayer list that we should be praying for, on everyone’s cancer statuses yesterday which was great, me still trying to get hair gel to smooth down the little hairs from the scar that are now long enough to look a little ridiculous, and the sometimes headaches and tingling that I often ignore but sometimes in one of these moods, wonder about. It is so stinking frustrating sometimes. On Sunday at the South Carolina delegation meeting we listened to a presentation on Benefits and Pension for close to two hours hearing about possible changes at the upcoming General Conference. When talking about life insurance and death benefits and spouses and pensions and insurance and disability for that long there is a large part of me that wants to just think of this as a tiny bump in the road and things are going to be fine and I’ll make it to the mandatory retirement age of 70. It could happen. I know that it could. And there’s another part of me that wants to figure out ways to provide and care for my family no matter what will happen and looking at all scenarios have as much of a plan as I can.

For the most part, I don’t even like bringing it up because I know if I talk to Josh about it while playing basketball or Mike about it when we get home from Wesley or to whoever in some ways, especially for my family, it stresses them out too. They don’t know what’s going to happen any more than I do.

It’s scary. And there’s still a part of me that is angry and frustrated that this is even part of our lives. There’s enough to worry about with kids and bills and living out one’s calling and vocational discernment to actually deal with all of this.

So that’s where I am. Saying to God it may just be a little too much and that I’m a little tired of battling in so many areas.

Are pastors “supposed” to say that? Who knows. But if I don’t keep it real and have my integrity than to me I’m nothing but a hypocrite and someone in denial.

The irony of this is that last night I preached during our sermon series on the book of Romans about God making impossible things possible. We were specifically looking at Romans 4 where it talks about Abraham and his faith. We then had some time of silence at the end where we could have a chance to think about some things that we would see or do or figure out or try or find if only we didn’t have doubts or fears or even sometimes “reality” holding us back. What would you do with your life if you could do absolutely anything and money nor education nor baggage nor what people would think were obstacles for you? What are some of your hopes and dreams for your family, your friends, your community, your church, your work? If we threw all of the “buts” out the window what would we grasp hold of and pursue?

What are the things that get in the way of that? What are some things we need to let go of in order to move forward and try to make our dreams into a reality?

These aren’t questions that you wrestle with for five minutes and than you’re good to go. Or maybe that works for you. I find that I have to intentionally pray and meditate and think and actually force myself to look and open my eyes and heart to the possibilities while telling my fears and frustration and failures to “shut it” for a few minutes so that I can see the light.

Because sometimes it feels like it’s a little too much. Actually sometimes it feels like it’s a lot too much. As excited as I was to move from 3 months to 6 months in the amount of MRI checks, there is a scared part of me that is nervous about that. What if that’s 3 months of something growing and us not doing something about it? I know that my doctors would never have let me go longer if I wasn’t ready to, but that’s what fears do…they somehow make it where even the things you want, you’re nervous about because you’re still feeling a way into a “new normal” or any kind of normal for that matter.

Then you go down the list of all of the people that have it so much worse than you and that things could be a million times more terrible….but that’s not comforting. I don’t want anyone to be going through anything like tumors or cancer or sickness and uncertainty of any kind. Does it mean that you’re thankful for all that God has done, is doing and will do? Sure. I have no idea what I would do without that. I need those times between me and God where I can say what I need to say and cry out and wrestle and not be censored by anyone.

We need time to sit and rest and be with God. We need time to let our fears and frustrations and disillusionment and grief go so that we can let new life spring forth not just in the midst of the weeds randomly despite everything, but in ways that we nurture and water and grow.

So I guess in this rambling post that may not be for anyone except for me writing and figuring this out – I need to find and make time to discern and be open to what God would have me do in this time and place, what God is calling my family to do, our community to do, Wesley to do. I need to trust that it’s okay that sometimes it’s a little too much and it can be heartbreaking and angering and discouraging and annoying. I need to realize that God is bigger than all of this – crazy dreams, long talks on benefits and pensions, things in my life playing up to my fears – and that God is with me and walking with me and comforting me each step of the way even when I want to bless the world and God out sometimes.