Posted in Abundance, Christian music, Community, Jesus, Uncategorized

Our Stories

I preached this at Point Hope UMC this morning.  They were very gracious to me and we had a delicious lunch after church that Mike and the kids have raved about all afternoon.  Thanks for being with me on this crazy journey called life.  I want you to share your stories  with me too!  ‘Cause we’re not meant to do this life alone.  Amen?

Psalm 77

1I cry aloud to God, aloud to God, that he may hear me.

2In the day of my trouble I seek the Lord; in the night my hand is stretched out without wearying; my soul refuses to be comforted.

3I think of God, and I moan; I meditate, and my spirit faints. Selah

4You keep my eyelids from closing; I am so troubled that I cannot speak.

5I consider the days of old, and remember the years of long ago.

6I commune with my heart in the night; I meditate and search my spirit:

7“Will the Lord spurn forever, and never again be favorable?

8Has his steadfast love ceased forever? Are his promises at an end for all time?

9Has God forgotten to be gracious? Has he in anger shut up his compassion?”

10And I say, “It is my grief that the right hand of the Most High has changed.”

11I will call to mind the deeds of the Lord; I will remember your wonders of old.

12I will meditate on all your work, and muse on your mighty deeds.

13Your way, O God, is holy. What god is so great as our God?

14You are the God who works wonders; you have displayed your might among the peoples.

15With your strong arm you redeemed your people, the descendants of Jacob and Joseph. Selah

16When the waters saw you, O God, when the waters saw you, they were afraid; the very deep trembled.

17The clouds poured out water; the skies thundered; your arrows flashed on every side.

18The crash of your thunder was in the whirlwind; your lightnings lit up the world; the earth trembled and shook.

19Your way was through the sea, your path, through the mighty waters; yet your footprints were unseen.

20You led your people like a flock by the hand of Moses and Aaron.

Some of you may be wondering what on earth is this preacher doing using a Psalm as her text on her first Sunday.  The Psalms get to the heart speak.  They get down deep, to the nitty gritty.  They’re full of real people celebrating their Good Shepherd and crying out desperately to God.  Both the mountaintops and valleys, the fullness of the human experience, is captured in the Psalms.

Let me tell you a story.  In my previous appointment I went to Costa Rica for a Spring Break mission trip in 2013 with Pura Vida Ministries.  Listen to their mission statement: “We exist to transform lives by providing Christ-centered, life-changing mission adventures.  We believe that following Jesus is Not an Event, but a Life!”  Not an event, but a life.  Not an event, but a life.  I believe that.  You will hear in my messages and hopefully see in my life a fervent desire to live our faith out loud, no matter the storms or challenges.  They had different merchandise you could buy with “Not an event, but a life” so I brought back a mousepad for my office, not knowing then that I would have my second brain surgery later that May.

At a conference in Winchester, VA I had my first seizure.  It was 2010 and I was 30 at the time.  I was diagnosed with a brain tumor that they removed most of two weeks later.  My tumor has a Harry Potter spell-like pronunciation to it – an oligodendroglioma. I had no complications or deficits after surgery.  I mean I had a tube coming out of my head with a blood bulb that I would put in the pocket of my hospital gown when I went to the bathroom but you go through what you have to.  I had the surgery on Friday and I was out on Sunday.  My son Enoch had just turned 3 and Evy was 1;58969_656598733737_2486331_n

so I recuperated at my brother Josh’s house.  I was back home and at work the next Thursday, less than a week later, easy, peasy, lemon squeezy.

I remember writing on the prayer request card from Pura Vida at the end of the trip that I would have an MRI the following Monday.  The MRI unfortunately showed the tumor had grown and so I began sharing with people that I would have a second surgery.  I thought it would be like the first surgery, so I agreed to do a wedding 3 weeks later and was set to do a workshop in Chicago that June and set to preach at camp for a week in July.  Unlike the first surgery where I had no complications, when I woke up I could understand everything the nurses, doctors, and my family were saying but I had lost my ability to speak.  The doctors and speech therapists call it apraxia.  Apraxia is the inability to execute learned purposeful movements, despite having the desire and the physical capacity to perform the movements. Oh, I had the desire in spades.  In other words, the words were still there but the ability to form sentences was broken, non-existent.

The tumor is on the motor cortex, that’s why they didn’t get it all the first time, so I had no feeling in my right arm or hand, and I’m right-handed.  I texted these words to my husband, Mike, with my left hand over two weeks later, “The quickness with which I speak comes back?”  It took me 45 minutes to text that.  I did 30 radiation treatments, 6 months of chemo, physical, occupational, and speech therapy over that year and then I went to the Ukraine to speak at a conference, but that is another sermon.

I’ve learned to rely on God because I HAVE to.  I am an independent, non-conformist person mixed with a perfectionistic people pleaser and I ALWAYS relied heavily on my communication skills.  I didn’t know how much until I couldn’t rattle off a prayer or answer a theological question or explain simple things to my kids or preach without a manuscript, or even the little things.  I used to carry around a small calendar in my purse to jot stuff down in, I used to type x number of words a minute, I used to love to send handwritten notes to people.  The ease and what came naturally to me before was lost and I still sometimes grieve that loss.  It’s okay to grieve.  God is with us when we mourn.  God promises to bring joy in the morning, so I went back to preaching in June.  I could read things and I reused every sermon that I had full manuscripts for that summer.  My oncologist, who I met with more frequently that first year and now at least every 3-4 months, was an older man who was all business and had a wry sense of humor.  Dr. Stahl always asked me if I was still preaching every week and I would always say yes.  He doesn’t know, by him asking me that question every time that I’m just stubborn, bull-headed and tenacious enough to see that as a challenge and with God’s strength, to make it happen!  He wrote this to me when he found out as I was moving, “It has been a privilege and a pleasure to have you as a patient-You have remarkable courage and determination-both of which have you served you well.”

We at the time had services every Sunday at 11 and every Wednesday night at 8:30 and shared in communion each time and it was a challenge to say the least.  A number of things helped me get through that time great students and other church members, Gator Wesley had been a local church and our older members sent me cards of encouragement almost every day, my speech therapist being patient and pushing me and saying your brain will rewire itself, songs like “Lord I Need You,” movies like “Rise of the Guardians” talking about what is your center and having faith even when you cannot see and “The Legend of Bagger Vance” talking about each of us has one, true, authentic swing, when I didn’t feel confident in my own voice, and y’all’s prayers, cards, and prayer shawls from around the United Methodist connection.  When I didn’t have the strength or the words or even the desire, on the dark nights of the soul, God was faithful.  When my primary care doctor said to me that September, I don’t think this brain tumor’s going to kill you, let’s get you healthy and strong, God was working through her to give me the hope that I needed to keep putting one foot in front of the other.  God can and does use us to be lights in a world full of darkness.  I knew then and I know now that God is with me every step of the way, continuing to strengthen me for the journey.  How do I know?  God gives us proof.   The little reassurances along the way – the person that says something and God’s speaking to me through their voice, the song that happens to come on the radio or the itunes shuffle at just the right time, the passage of scripture I happen to read that morning…it doesn’t just “happen.”  It’s a God thing.  Claim it.  Know it.  Trust it.  Be the person that Mother Teresa emulated as she said, “I’m a little pencil in the hand of a writing God, who is sending a love letter to the world.”

God is ever present reminding me I am enough even when I don’t have the words.  I am worthy even when I don’t have the answers.  I can claim my inheritance by simply resting in the surety that I am a child of God.  We all can.  We are all worthy and enough.  If I have learned anything over the past 6 years is it’s not enough to just merely have these quick fix Jesus highs, these Psalms of praise alone – no matter how great they are – because they won’t sustain you when the ship hits the sand or when the rubber hits the road and you’re left bereft.  Developing a real, in depth relationship with Jesus will.  Developing a faith that lasts and is rooted and grounded in scripture will.  A verse, a song lyric, a prayer….When the storms of life are raging, I know where my hope is and that is in Christ alone.  We sang the hymn, “In Christ Alone” at Annual Conference in 2011, one year after the first surgery, and we sang it just now before the sermon.  It’s a song that means very much to me, especially the last verse.

No guilt in life, no fear in death,
This is the power of Christ in me;
From life’s first cry to final breath.
Jesus commands my destiny.
No power of hell, no scheme of man,
Can ever pluck me from His hand;
Till He returns or calls me home,
Here in the power of Christ I’ll stand.

At a retreat a year after the second surgery, the facilitator asked us to write questions on 3 cards.  They were to be questions where we needed the Holy Spirit to intercede, questions that were rolling around our heads but we had never articulated.  Then we were to paint and cut out pictures from magazines for each card without seeing what questions were on the back.  So I went to a place by myself and I invited the Holy Spirit to come by lighting a candle and I wrote these questions:

1.  What do I need more of in my life?
What do I need to embrace? 
Question 1

2.  What obstacles of the joy God wants for me do I consciously or subconsciously allow to hinder me from experiencing that joy? Question 2

3.  What do I need to let go?  Why am I so afraid to share my story?  Question 3

I went through the cards and picked colors and themes as I felt the Spirit leading me to.  Despite my skepticism, this activity ended being one of the most powerful practices that I have ever experienced.  I had gotten so caught up in my designs and cutting anything out that struck me that I had completely forgotten the original questions.

The answer to the first question was this: written in pencil “In Christ Alone, cancer, and colors.   I needed to embrace my cancer.  I was a cancer survivor.  And I need to place my trust “in Christ alone.”  Even the part about the skin was pointing to me embracing myself.  I had the dot tattoo so they could line me up to do my radiation and I had the scars from both the surgeries, but in the back of my mind I was still hiding.Image 1

We had been singing “In Christ Alone” during this retreat and when I shared that piece of my story later when all of us were sharing, we sang that as a closing song, which brought me to healing, relieving tears, like I let go of a burden.  The second question was this picture.  I look at this picture, I feel peace and beauty, and I needed more of that in my life after the year I had so I made a commitment to make room for beauty and positive and calming messages, so that’s why my office and home are decorated in such ways.Image 2

The last question of “What do I need to let go?” was the safe question.  God was leading me to ask what I really needed.  And the Holy Spirit was so loud in me, that I scribbled down the last question. It was surprising to me because I try to be real and authentic in all aspects of my life.  That’s why I created the blog in 2010. I didn’t want to actually talk about my blog or anything that I wrote.  And it was self-preservation and a bit of laziness to be sure because it was a  way to share with my family, friends, students and the communities that raised me and fed me and are praying with me something I couldn’t say out loud.  It was to share authentically with the world what was going on with me.  It was a way to update everyone at once with what was going on inside my head.  I rarely re-read and edit.  So this question was surprising to me.  But Proverbs 3:5-6 says “Trust in the Lord with all your heart, and do not rely on your own insight. In all your ways acknowledge him, and he will make straight your paths.”  It struck me as I was writing this sermon that I use “afraid.”  And I think that is telling.  I admit now I was afraid and I am afraid of being misunderstood, of losing my words, of not being in control…but as 1 Timothy 1:7 says God does not give us a spirit of fear, but rather a spirit of power and love.  God doesn’t call us to be silent, God calls to be bold and step out in faith and God will give us the words to speak. Image 3

Everything.  I needed to let go of everything.  And I felt safe in the arms of Mike in it all, but more than that I felt like God had and is protecting me from the storm.  God was creating the perfect shelter, an eye in the hurricane.  God was also giving me a clear message with these cards.  I needed to share my story, integrating the cancer, no matter how hard, personal, and vulnerable.

 I’ve claimed the words of Isaiah 41:8-10 (NRSV) But you, Israel, my servant, Jacob, whom I have chosen, the offspring of Abraham, my friend; you whom I took from the ends of the earth, and called from its farthest corners, saying to you, “You are my servant, I have chosen you and not cast you off”; 10 do not fear, for I am with you, do not be afraid, for I am your God; I will strengthen you, I will help you, I will uphold you with my victorious right hand.”

Bob Goff in his book Love Does says, “I once heard somebody say that God had closed a door on an opportunity that they hoped for.  But I’ve always wondered if, when we want to do something that we know is right and good, God places that desire deep in our hearts because He wants it for us and it honors Him.  Maybe there are times when we think a door has been closed and, instead of misinterpreting the circumstances, God wants us to kick it down.  Or perhaps just sit outside of it long enough until somebody tells us we can come in.”

God wants us to dream large God-sized dreams.  God wants us to sometimes kick doors down.  God wants to give us a future with hope.  As Jeremiah 29:11-14 says, “11 For surely I know the plans I have for you, says the Lord, plans for your welfare and not for harm, to give you a future with hope. 12 Then when you call upon me and come and pray to me, I will hear you. 13 When you search for me, you will find me; if you seek me with all your heart, 14 I will let you find me, says the Lord, and I will restore your fortunes and gather you from all the nations and all the places where I have driven you, says the Lord, and I will bring you back to the place from which I sent you into exile.”  Or as it is in 1 Corinthians 2:9, “What no eye has seen, nor ear heard, nor the human heart conceived, what God has prepared for those who love him.”  Or as it is in Ephesians 3:20, “Now to him who by the power at work within us is able to accomplish abundantly far more than all we can ask or imagine.”

We’re not meant to walk this road alone.  I want to walk with you and hear your stories so that in the mountain tops and the valleys, we can share with one another, come alongside one another, praying for each other, being church with one another.  It’s a crazy cool relay race in the United Methodist Church’s system of itineracy.  Joe passed Walter the torch. Walter passed me the torch and I am ever grateful for that torch and the care in which he handed it off.  In 1 Corinthians 3:6, “Paul wrote, “I planted the seed, Apollos watered it, but God has been making it grow.”   The earth is fertile here at Point Hope and God is indeed in your midst making things grow and making all things new.  I trust God to rock our socks off!  That’s the beautiful and crazy gift of having life in Christ.  You follow where God has called you, no matter that you’re too old to have kids, like Abraham, no matter if you’re a prostitute, like Rahab, no matter the speech impediment like Moses, no matter if you don’t want to, like Jonah, no matter if you’re left in a foreign land with your mother in law, like Ruth…and that’s just the Old Testament.  The Bible is chock full of stories about God doing extraordinary things with ordinary people.  God didn’t stop writing stories two thousand years ago.  I’m reminded of the Big Daddy Weave song that weaves in the hymn “This is my story, this is my song.”  The lines are

 If I told you my story
You would hear hope that wouldn’t let go
If I told you my story
You would hear love that never gave up
If I told you my story
You would hear life but it wasn’t mine

If I should speak then let it be

Of the grace that is greater than all my sin
Of when justice was served and where mercy wins
Of the kindness of Jesus that draws me in
To tell you my story is to tell of Him

We all have a story and when we take a moment in our busy lives to catch our breath and let the God that came and dwelt among us have room in our lives, we create room for God to share with us.  If you’re thinking you don’t have a story, ask God and God will reveal your story.  Or if the problem is not you not knowing, but getting it out or just not telling it, than Marianne Williamson says it this way, “Our deepest fear is not that we are inadequate.  Our deepest fear is that we are powerful beyond measure.  It is our light, not our darkness that most frightens us.  We ask ourselves, Who am I to be brilliant, gorgeous, talented, fabulous?  Actually, who are you not to be.  You are a child of God.  Your playing small does not serve the world.  There is nothing enlightened about shrinking so that other people won’t feel insecure around you.  We are all meant to shine, as children do.  We were born to make manifest the glory of God that is within us.  It is not just in some of us; it is in everyone.  And as we let our own light shine, we unconsciously give other people permission to do the same.  As we are liberated from our own fear, our presence automatically liberates others.”  Let your light shine that the world may see and know.  If we all share our lights together – we will – with God’s strength – rock their socks off!

I had no idea before the age of 30 that my story would include a brain tumor, but I know I have life, indeed abundant life in Christ.  Not just surviving but thriving. Too often I hear that we’ve just got to get through high school or college or grad school or we have to get our first job or get married or have children or retire to figure out what in the heck to do with our lives, but God doesn’t want us to let life pass us by so that we’re only barely surviving. God wants us to thrive.  Jesus didn’t come so we could have a complacent life.  He came for us to have abundant life.

I want each of us to be a part of God’s larger. Broader story, in our own particular way, with our own spiritual gifts, strengths or weaknesses that God works for good.  Look under your chair, some of you might have peeked already, and that’s perfectly okay.  This is to basically sum up my sermon and it was made by one of my favorite artists Suzanne Vinson.  Here’s the full quote from Frederich Buechner.

“The grace of God means something like: Here is your life. You might never have been, but you are because the party wouldn’t have been complete without you. Here is the world. Beautiful and terrible things will happen. Don’t be afraid. I am with you. Nothing can ever separate us. It’s for you I created the universe. I love you. There’s only one catch. Like any other gift, the gift of grace can be yours only if you’ll reach out and take it. Maybe being able to reach out and take it is a gift too.”

I would like you to take this with you.  Keep it in your wallet or in your dashboard or on your bathroom mirror.  Let it be a reminder that nothing can separate you from the love of God and God’s abundant grace, and though beautiful and terrible things will inevitably happen, we are not to fear, because we know the One who spoke things into existence, who is our Creator, Redeemer and Sustainer.  Amen.  Let us pray.

*  Music that I was listening to while I wrote this sermon.  TobyMac “Move” Hawk Nelson  “Drops in the Ocean” “Lord I Need You”  Lauren Daigle “Trust In You” Sidewalk Prophets “Prodigal” Ryan Stevenson “The Eye of the Storm” Aaron Shust“Ever Be” Hollyn “Alone”

 

 

 

 

 

Posted in Brain Tumor, Cancer, Health, Helpless

Survival Mode

I had coffee with a friend last Thursday night, and we both intentionally want the friendship to go deeper than just our kids play together, so that’s why we made it a no kid time coffee date. Two-thirds of the way through the conversation she asked me, and I’m paraphrasing here, if I had processed the surgery? I stopped before answering because I want to be honest in our burgeoning friendship, and I said no. Not entirely. That stayed with me throughout the entire weekend. I was shocked at the strong, protective feelings her initial question evoked and there was a definite shift in the conversation.

Mike and I celebrated a long overdue date night. We had received a gift card for Mark’s Prime, a fancy place in Gainesville (thanks Brittany and Brian!) and we splurged ordering appetizers, steak, and dessert. (See Mom I do make an effort to eat red meat the week before chemo!) Then we watched a movie just right for us. Saturday was spent in typical fashion, Evy talking to Mr. Sun on our way to Krispy Kreme, Enoch threatening to put Mommy and Daddy in time out if we yelled any louder at the football game. Then Sunday it was a full day at Gator Wesley.

I didn’t consciously think about my friend’s question until they started my IV for the contrast in the MRI this morning.

Then left with no phone or book or students or laundry or things that need cleaning or ways to procrastinate, I was left alone and perfectly still with my thoughts for a whole 45 minutes. I’ve had longer MRI’s, but this FELT longer. I was trying to pray. To be present. To make this time somehow “productive.” To fight off the occasional panic attack. But the question remained.

And then fast forward to the doctor’s appointment. The oncologist’s resident came in first to ask me a few questions. I was struck by two things. The first the only person to have cancer in my family was my paternal grandfather (prostate cancer). After my grandmother died of a heart attack, the results came back the next day that she had leukemia. Now, don’t get me wrong, it’s not that we don’t have our fair share of health problems, diabetes to the extreme on Dad’s side and cholesterol and extreme heart disease on my mom’s. But growing up, cancer was never something we worried about. My grandfather was given 6 months to live when Dad was a little boy and then he lived until I was a junior in college.

The second was how different this recovery was to my first surgery. They were DRAMATICALLY different. In 2010, I came out of surgery completely normal (or as normal as I could be…). The surgery in 2010 I had no deficits, except recalling some names. I woke up in ICU talking and thinking clearly, and I went back to work a week later, ready to be back. I experienced the same pre-op that I had before, but waking up in the recovery room unable to speak but fully understanding all that was happening around me and to me….(what I was experiencing was apraxia, which I define below)…and the nurse(s) wondering aloud what was wrong with me, they had never seen someone come out of brain surgery like this…and my people pleasing nature coming out for sure…me wondering how to communicate to them about my pain needs…wondering all the time if this was permanent…the doctor checking in because the nurses apparently called him…me trying to communicate with my eyes the helplessness I felt…and sobbing when I couldn’t communicate with the doctor. That’s the last time I cried in the hospital. I guess I flipped a switch. Moving into survival mode.

I was reading back through my “notes” before the MRI. Iphones have these things called “notes” that are an app where you can type directly into it. At the end of May/beginning of June this was my preferred method of conversing because it was still hard for me to speak at that time. Somehow it was easier for me to order the words if I typed them. In the midst of “notes” of song lyrics, movies to watch, quotes from speakers at the UMCMA conference, benedictions/prayers that I had to type up to say them, notes from our staff retreat in NYC, was this hidden gem. May 24, 2013, exactly two weeks after the surgery, I typed, “The quickness with which I speak comes back?” I imagine this was thrust in the face of Mike at some point, as I gathered the courage for days to ask that question.

I ended the work day with a meeting of a newly formed clergywomen’s covenant group. I could barely articulate to them the events of the day. They had seen the facebook post so they knew the results of the MRI. A fellow clergywoman, I had not met before today, at the end of our conversation, called me a beautiful person and I answered honestly that I don’t feel that way now. I repeated my answer, but I was unable to add or articulate the words that would disguise my bruised soul. So it was left hanging out there.

So on my way I called Mike debating if I should go home or back to Wesley before freshman small group. And he said that he had been feeling the same way. He didn’t understand it either. He said he had walked around the neighborhood with the kids and that made him feel better, to get out the excess energy. And he encouraged me to do a blog, because that’s the way I process. Why are we not feeling relief/excitement/joy at the good news of the MRI results? I don’t know. Maybe we never turned off survival mode. Maybe during “recovery” we never quite recovered. Maybe it takes time. My mom texted me tonight, “Ask Jesus to show you where he was” in the post-op. And that may lead to an entirely different blog post.

I’m glad for the friend who asked the question. Because she, without her knowing, set me off on a journey towards healing….

*** Apraxia (from Greek praxis, an act, work, or deed[1]) is characterized by loss of the ability to execute or carry out learned purposeful movements,[2] despite having the desire and the physical ability to perform the movements. It is a disorder of motor planning, which may be acquired or developmental, but is not caused by incoordination, sensory loss, or failure to comprehend simple commands (which can be tested by asking the person to recognize the correct movement from a series). It is caused by damage to specific areas of the cerebrum.

Posted in Health, Natalie Grant, Tumor

Hurricane

I have my first MRI post-surgery tomorrow at 9 am. The doctor is going to read it at our appointment at 1 pm. I’m not expecting that the tumor will grow back overnight. Not by any means. And I’m sure the doctor’s visit will be anticlimactic – but only in a GREAT, AWESOME, GOD way.

This song “Hurricane” by Natalie Grant has really struck me lately.

Posted in Battle, calling, Grief, Health, Hope

Little Hairs

I’m crying alone at my desk with the door closed because it’s been a really cruddy day.  And I can’t go anywhere without seeing these little hairs everywhere.  I’m frustrated.  And I want to go on a date with Mike and stop thinking about these things.  He’s promised me to shave my hair completely off tonight so I won’t see the little hairs anymore.  I may be vain.  But I liked my hair.  I was sort of attached to it.  Or it was to me any way.

Bald is beautiful.  It will grow back.  This too shall pass.  It’s only for six weeks.  There’s people worse off than you.  No one is unaffected by cancer.

But I want to scream.

And break stuff.

Then I listen to The Call by Regina Spektor and the tears are flowing freely down my face.  I first heard the song on The Chronicles of Narnia:  Prince Caspian soundtrack.  I really relate to the beginning of the song, “It started out as a feeling/Which then grew into a hope/Which then turned into a quiet thought/Which then turned into a quiet word
/And then that word grew louder and louder/’Til it was a battle cry…”

http://www.youtube.com/watch?v=WY0QcSQf_mc

Thanks for letting me vent.  I’ve stopped crying.  I will hold fast to the truth of John 16:33, “I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.”

Posted in Community, Health, Love, Prayer, Providence, Tumor, Worship

LOVE – Songs of my Soul for Now

In an hour I go to the hospital for my second brain surgery and it feels super surreal to write that.  I wanted to post a quick blog before I go to say thank you to everyone who is praying and who has been supporting us.  We can feel your love and the community surrounding us!

I spent this past week with 30+ students from Gator Wesley touring around the state of Florida doing our Spring Tour – singing, dancing, rocking out, reading scripture and so much more.  There’s a song that they sing in one of the sets (and I love the mash up that they do) called “Set a Fire” by United Pursuit Band and one of the lines says, “There’s no place I’d rather be…but here in Your love…”  I’ve felt that from each of you.

Campus ministry is this crazy special place where things intersect – struggles, fears, hopes, dreams, silly Vine videos, lots of laughter, and experiences that both challenge and inspire. The students this week have inspired the heck out of me.  I’ve been ministered to in their music and their passion and their faith, and even more than that in their zest for life!  There weren’t many stops during this tour where I didn’t feel moved in some way and though I couldn’t figure out how to share that with them without becoming a blubbering hot mess, I want to let them know how special this week was for me.  Even the trampolines.  And the cold water of the spring when knocked off a raft.

Two of the songs that they’ve been singing are two favorites of mine that I’ve been holding dear over the past few weeks.  They didn’t know that when they picked the songs how much they have been resonating with me and yet again, I know that God is weaving all of this together in mighty ways.  The first is Meredith Andrews’ “Not for a Moment.”

And the second is by an amazing band that we hosted here at Gator Wesley called Bellarive.  It’s their song, “Taste of Eternity.”

These have been the songs of my heart.  Worship taps into a place that breaks down the barriers that we place.  It digs in between the walls that we’ve built to protect ourselves and the layers of stress and muck that this world provides.  May the scales on our hearts and our eyes be removed that we may see God more clearly and know God more fully, as God draws us to God’s self.  I know that no matter what happens today, I know that I am God’s and God is ever in the midst working things together for good.

Y’all have humbled me speechless with all of your texts, facebook messages, tweets, and cards and I hope that each of you feels the love, hugs, fist pumps, and high fives that we have for you!  Thanks for being on this journey with me.

Much love!

Cheers to a new haircut!

Grace and Peace,

Narcie

Posted in Anger, Faith, Frustration, Grief, Life, Tumor

The Anger Stage

So it’s there.  A little bit after the parental units, but nonetheless, the anger stage is in the house.  I, like most of you, know about the stages of grief and it’s almost worse that I know this and realize this and can clinically say, why of course, Narcie Jeter, what you are experiencing is a quite substantial dose of the anger and sadness stages of grief.

Lord knows why it took me so long and why I went into survival, defuse the situation, and keep bouncing along mode except for the fact that I just really don’t want to deal with this.  I really don’t want to think about surgery again.  I really don’t want to show the kids the scar from the last time and let them know this is all going to be okay.  I really don’t want to feel so freaking ticked off and frustrated and distracted and weepy.  Weepy.  And not in a nice, cute crying way, but watching old episodes of Dawson’s Creek and crying like a nutcase.

I don’t really know how to make this feeling go away so besides the Dawson’s Creek marathon which is strangely always comforting (nutcase, I told you), I’m trying to blog it out.  Maybe if I articulate whatever this is…since I don’t really have a punching bag and I probably shouldn’t throw things against the wall so late at night.

I don’t actually know what I want.

I don’t know if there’s an answer.

I don’t even know if there’s a question.

Things I know:  I love my family.  I trust God.  I know there are many, many people praying.  I appreciate that greatly.  I love what I do – all of it – silly, serious, and in between.  I am tired.  I am worried.  I am scared.  I am loved and cherished by an amazing man who is more than I ever deserve or imagined.  I have done this before and I know all will be fine and it’s a great doctor and facility.  I can’t decide if this is a big deal or not a big deal or if it’s just normal, which is weird and not quite right.  I’m already wondering about the next surgery or what will happen…  I have the two silliest, sweetest, most unique and precious and precocious children imaginable and I swing between the hope that they may never know anything about this because I wish I could control things and realizing that this isn’t just my story but our story.  I realize that there are a heck of a lot of people dealing with things more awful and challenging and I sometimes feel whiny and weak for even articulating this.

And yet.  When I start typing and I stop feeling the waves of anger for a bit and I stop crying along to “I Don’t Wanna Wait” like a sad sack, I know that God is carrying me and holding me each step of the way, which ironically in some ways makes me cry more.  And for the record, I’m not writing that as a pastor and I don’t care a hill of beans if anyone reads this, but it’s just good to feel and know that.  Even as silly as that may seem to some.

Thanks for being on this journey.  Thanks for praying.  Even if I don’t always answer the emails, comments, facebooks, fast enough or at all, know that I appreciate them and I read them.  They help that “held” feeling when it’s denial, anger, sadness, and yuck city.  Love you all.  Especially my crazy WNWers that would let me share my Dawson’s obsession.  And if any of you reading this make fun of me for my silly, trashy, and immature tv watching….you’re going to get it.  (I kid.  Mostly.)

***I also realize that I write plenty of run-on, stream of consciousness sentences, and I, nor the English major inside of me, actually cares.  So ha!

Posted in Health, Tumor

Surgery Date

It’s official.

Surgery will be on May 10th and pre-op on May 3rd.

Thanks for y’all’s prayers, your comments on the blog, your comments on facebook and all of the messages!  Much love to each of you.

All of us greatly appreciate it.  As I know more, I’ll let you know.  As I process more, I’ll try to post.  The in between time makes this a bit surreal but I know that God is with us.  I know there are quotes out there like “Never trust quotes posted on the internet” – Abraham Lincoln, and I don’t know if this one is completely true or not, but as my uncle Carlee would quote John Wesley saying, “The best of all is, God is with us.”

Posted in Family, Health, Holy Week, Mommy, Support, Thankful, Trust, Tumor, Unexpected

Here We Go Again.

In December I had an appointment with my neurosurgeon in Charlotte and since it was the last day of classes here and was a 7 hour drive, I decided to cancel it and find a neurosurgeon here in Gainesville.  I didn’t make this decision lightly and I looked up all sorts of things about the awesome program here and I asked around to a number of people.  I saw my new neurosurgeon for the first time on Valentine’s Day (ha!).  He ordered an MRI to be done the Monday after our spring break trip to Costa Rica (March 11th).  On Tuesday, March 19th while Mike and I ate lunch with Evy, the nurse called and said that the doctor recommended surgery.  She then set an appointment for me to talk to him about this for today, March 28th.

Mike and I of course called our parents.  I didn’t want to say anything about this before we knew anything, but needless to say, we’ve been pretty distracted this past week and because I try to be a reasonably transparent person, it was hard to preach on Palm Sunday or for either of us to function without a twinge of something always in the background.  My parents came to visit last night so that Mom could go with us to the appointment and Dad being the great MacMac that he is, could hang out with the kids this morning since they’re on spring break.

Three years have passed since the first surgery.  To review, my doctor in Charlotte removed what he could of the tumor but left a strip near the motor cortex of the brain.  The type of tumor I have is an oligodendroglioma and very thankfully it’s a grade II (low grade).  At the time, research and common practice said that you take a watch and wait perspective and treat symptoms.  Now, research says that you resect as much as you can of the tumor so that it does not increase in grade.  They will use computer guidance to make sure that they are as precise as possible in removing as much as they can of the tumor that remains.  All of the risks associated with brain surgery are still at play here (duh.), but even more than that, because this is on my motor cortex, there could be temporary weakness in my right arm, hand and face.  As he said, scenario A is much like the first surgery – I come in on Friday and have surgery, I go home on Sunday, and I go back to work on Wednesday (this is also because I’m a crazy person that likes to work – yes, I know).  Scenario B is I go into surgery on Friday, hopefully still leave on Sunday depending on some things, go back to work in two weeks, and then possibly do physical therapy and rehab for a month.  If removing as much of the tumor as possible gives me a higher means of this not turning into something worse, I’m willing to risk either scenario.  The doctor’s suggestion is to take the “earliest elective opportunity” to do the surgery.

I’ve decided to do the surgery in May – most likely either May 10th or May 17th.  What does this mean for our family?  The kids were 1 and just turning 3 when the first surgery happened so they thought Mommy was on a trip of some sort.  They’re 4 and 5 now so we’ll be handling things a little differently.  They’ll still be in school so that should help.  I am blessed with an incredible extended family….and in essence I consider y’all a part of that as well.  Mike has been an absolute rock in all of this and I can’t begin to thank him for living out the weight of our vows every day.  The irony of asking him today – do you want to have the surgery around our 11th anniversary (May 11th) or around your 34th birthday (May 16th)?  I know that God is with us and will provide – whether that’s within the surgery, recovery, sanity, financially or us trying to squeeze in two more days at Disney before June 6th when our passes expire =0).  I’m also looking at the beginning of May so that I can be present for all of the end of semester fun, but before things ramp back up for summer.  I didn’t plan on a surgery during my first year here in Gainesville, but I know that there’s an amazing staff, student leaders and board here and we’ll be good to go.  As always, I’m pretty open with questions – so if you have one, ask me.  I also tend to use the blog to process and answer things as I can. (Don’t be afraid.  I’m not “broken” or an invalid, and I’m still the same person.  Human as can be, but trying to figure it out….so ask, don’t just wonder.)

As soon as I get the actual date of the surgery, I’ll definitely post it and I will hugely appreciate all of your prayers!

So all that to say, I don’t have any big actual blog “reflection” tonight.  We just completed the Maundy Thursday service and I’m pretty spent at this point, which I guess is just about right with Good Friday coming tomorrow.  I am increasingly struck this Easter season that there’s no fast forward button between Palm Sunday with the Hosannas and Easter.  I also appreciated a song that my parent’s sent me when I told them this last week.  It’s Tenth Avenue North’s “Worn.”  Hope that during this Holy Week we are reminded of our redemption, peace and hope in Christ in the midst of the sometimes dark despair.

For those visual people out there that want to pray over an image….rock on.

Image

Posted in Community, Easter, Faith, Health, Holy Week, Miracle, Prayer, Support

Miraculous

ImageI got a phone call on Friday after a long week of good, fun, tiring and yet rewarding work.  It was not a number that I or my phone recognized and I’m usually tempted to let those go to voice mail since you never know if it’s a survey or a wrong number or who knows.  But for once, I didn’t.  It was a student who had something to give me.  A pastor of hers knew that she was a student at Winthrop so she wanted to pass something along to me.  That’s all she really said.  So I had no idea what this could be.

When she stopped by Wesley, she handed me a beautifully colored picture.  I love rainbows and bright colorful things so I liked the picture instantly.  She then said that it was a Mandala and as the picture says on the back – it’s a contemplative practice.  Rev. Annie Edwards who I don’t know, created this for me during my brain surgery in 2010.  She started it at 11:45 am and finished it at 1:30 pm – truly roughly the time of my surgery.  As she writes on the back, “This was done for you during your surgery, with love and compassion.  Your Dad is my friend.”

It’s beautiful and something I’ll treasure.  As are the prayer shawls, books, pictures, everything that has been passed along to me that I can share with others.

I am admittedly sometimes flippant about the surgery and I in some ways am pretty successful at brushing it off.  In my day to day life – I don’t walk around with a sign around my neck that mentions it.  When I get an invitation to the survivor’s dinner for Relay for Life, I am more often than not – surprised.  But I think, as is often the case with the things that we are flippant about, most of my bravado comes from a place that is truly grateful and humbled by the outpouring of love and support – so much so that I don’t know if I can express how much it means or how much even when it’s not at the forefront of my mind – that I depend and rely on the prayers and the Spirit of mercy and grace that I feel ever present.

It’s not something that I’m afraid to talk about, but it is something that’s deeply personal.  So yes, I keep it on the About Me part of the blog – though I’ve debated that – and it becomes a part of the fabric of my life.  Not definitive of all of who I am, but yes a defining moment….among many.

One of the things that struck me on Friday was yes, the picture, but also what the girl from Winthrop who I’ve never met, said to me as she delivered.  She talked about what a miracle it is.  I asked her what she meant and she said, “You.  It’s miraculous.”  No, this is not a big head moment.  I’m not slapping myself on the back. But part of me did want to slap my forehead at the “Doh!” moment.  I don’t know about you but I think it’s easier for me to see the miracles around me – my students, Spring, healing of friends and family, the birth of a child – but it’s harder to see ourselves in that way.  I don’t know if we can even wrap our minds around that.  But we can sure as heck be grateful.  And hugely grateful at that.  For the prayers of so many, for the love that encircles us, and for the hope of the resurrection.

During this Holy Week, my hope is that I not rush straight to the resurrection but that I take time to attend to the twists and turns between Palm Sunday to Maundy Thursday and that I’m attentive to all that is the darkness and despair of Good Friday because we all have felt and walked and witnessed times like that.  And that when I hear the Good News of the resurrection on Easter morning that I feel both the impossibility and the miraculous and the ever present and real hope and promise that it offers.  May we know and see the miracles in each of our lives, our communities and the world around us and may we claim and treasure them!

 

**  Dad’s reflection on this time period – Holy Saturday Redux – http://wtmcclendon.wordpress.com/2010/06/16/holy-saturday-redux/  I think about it around this time of year…and I appreciate his honesty.