Posted in Faith, Family, Health, Methodism, Television, Tumor

The Hills

Yes, I’m starting to think I watch too much tv.  However I gave up on The Hills when LC left and there’s nothing really on television right now, so whatever – everyone needs a little catch up.  Why in the heck is Audrina talking to Justin Bobby?  Enough of that.

Well, I’m here at Annual Conference.  Mom and I are living it up in the nice hotel room while Dad and Josh are sleeping outside to raise money for the Central Conference Pension Initiative.  Funny.  I had originally promised that I would spend at least one night outside in solidarity but since I’m only here one night, might as well enjoy the hotel room!  I did help make the posters and construct Josh’s gurt.  Probably spelled that wrong.  If I had a camera I would take you a picture but I totally can’t describe it.

Love, love, loved eating some good bar-b-que with the section 316 folks.  It’s good to break into conference with some love and fellowship and church because we are each other’s church.  We’re each other’s community and it’s good to know that and feel that and trust that.  I hope people take advantage of the tent city and sharing meals and sitting with and getting to know new folks because it’s so important to step out of our little boxes and get to know each other and ways other than that superficial.  We have prayer requests that go out over the conference email list but really knowing each other takes a bit more than just sitting through business once a year.  I’m glad that that’s not all that Christian conferencing is and I’m real glad that we can have a little fun and real relationship here.

So as I watched Josh build his hexayurt or whatever the heck it’s called, I saw I missed a call and listened to a voicemail from the neurosurgeon.  He’s on vacation this week but had received the MRI and functional MRI results.  He gave me his cell number and I called him back and talked with him and let me tell you – that was so good.  To call and talk to not an operator or someone taking my information or just doing a courtesy call, but to the real, live doctor that’s going to be taking out this tumor.  He said that the tumor is right beside the motor cortex but it has not invaded it.  I’m telling you I was thinking about the matrix and those yucky bug looking things that try to break into the ship and I’m thinking heck yeah go motor cortex don’t let that yucky stuff get in there, but that’s my weird brain for you.

Anyway, he said that he should be able to get most of it and that should be the main tricky part – the posterior deep lateral part – whatever that means but those are the area to pray for great precision.  Another prayer would be that he said we can hope that under the microscope it will be obvious what the bad brain matter is and what the good brain matter is based on how they look.  So may that be crystal clear – maybe not matrix like yucky stuff, but nevertheless clear.  He said that there is a small chance of some side effects and potential harm, but that the hope of getting it all out is far outweighs the bad potential so I’m good with that.  He again said what they told me about the one night in neurointensive care and then 3-5 days after that but he (and this is why I like him) leaned more towards the 3 days.  His hope was that in 2-3 weeks I’d be getting my energy back and would be ready to rock and roll and that they could then monitor things by MRI.  The pathologists won’t fully get anything back about what the tumor is, etc. for about 2-3 weeks so hopefully as I start to feel better we can then find out what the heck this whole thing was.

I felt a gazillion times better after talking to him.  Hugely.  He said that he would answer any questions I had on Friday as well – gosh, it’s nice to be able to ask questions.  I feel better.  Or maybe that’s the smell from the sharpie markers that we used to make signs for the Central Conference Pension Initiative.  Either way – I feel like giving my brain a high five for keeping the tumor from invading certain parts and I can feel the prayers around me.

Prayers for all of the many people wrestling with stuff right now – whether that be next steps, destinations, or unsettling news.  May we each have the good sense not to go it alone and the community of support around us to carry us home.

Posted in Faith, Family, Health, Music, Tumor

The latest

I realize that some of y’all humor my rambles and some of you want to cut to the chase and get the facts of the matter so here is your bare basics for now.

We went to the MRI and Functional MRI today.  We arrived at 2:10 and I went in around 3:15.  Needless to say I got out at close to 6:15 pm.  Wow that was long.  They were doing some sort of research study and I signed some waivers for them to do whatever in the heck they were doing.  Figured it couldn’t hurt.  And then I got to hear a bunch of noise and wiggle my fingers and toes for awhile.  Didn’t hear anything afterwards except that the nurse said that everyone seems on the same page and I have a good neurosurgeon that will be able to answer my questions on Friday.  So – that’s where we are.  I don’t have any more answers than that.

The team (it’s kind of weird having a team) will meet over the next couple of days and we’re still good to go for Friday.  Still going there around 11:15 am and beginning around 1:30 pm at CMC’s main campus.

I am much more worried about afterwards than during but that’s probably my stubborness coming through.  Who likes change?  Especially where a 1 and a half and 3 year old are concerned?  How in the heck will I get ready for the coming school year or be ready to welcome freshman?  Will I be able to play with my kids as usual?  I don’t even want to think about hospital bills, insurance, or co-pays…  And the ever present question about my hair or what this recovery will be like…  It is what it is and where heading forward full steam ahead.

But we’re not going alone and for that I am hugely thankful.  Thanks so much for the prayers!  Thanks hugely to GiGi for watching the kids and being here during this time.  As always love to brothers and sisters in law and family for keeping it real.  Thanks to my parents for riding up and down that road to Columbia and for being here.  Thanks to my students for keeping me human in the midst of this and being wonderful.  Thanks to each of you for your comments, emails, notes, cards, EVERYTHING – they have each meant the world.  Thanks especially to my precious children who are the best cuddlers and welcome homers I know and to my amazing rock of a husband Mike who has been unwavering and more amazing than I could imagine or ask for through all of this.  It’s been a week and a half.  When I have surgery it will be just barely 2 weeks from being healthy happy narcie to what in the heck is in my brain.

I didn’t know I could be so tired, so grateful, so scared, so at peace, and so hopeful all at the same time.

  She does theodicy so well….Amy Grant’s Somewhere Down the Road…http://www.youtube.com/watch?v=vYtqPgIE-kg

Going to sleep now! =0)

Posted in Culture, Faith, Family

Even the trashy Philippa Gregory novels…

Okay so my thinking of “for such a time as this” extends far beyond just Ms. Esther.  I really do believe that God brings things into our lives for particular journeys.  No this is not everything happens for a reason or just the beginning of “For Good” ie. “People come into our lives for a reason…”  Nope.  I’m talking about reading that book or hearing that song or getting that email or reading that billboard or whatever at just the right time and that be a little message to keep you hanging on and keeping on.

So I’ve never totally loved the raunchy romances of life.  I am one of those people that like Christian romances.  Yep, that aisle in the bookstores that says Christian fiction welp I used to make a home there.  Okay, I’m out.  There’s a whole shelf in Wesley dedicated to these treasures of mine.  Love Robin Jones Gunn.  Love Linda Chaikin.  Love, love, love them!  When I was at Emory some of the students gave me a Christian dating book in tribute to these crazy books of mine even though I was long married at that point.  There’s something about a good story and the Lord of all driving it that makes me happy – I like both the passion and the faith.  Now my grandmother loved books.  Good golly I can’t even remember a time til her dying day that she didn’t have a book beside her.  Mine go with me in my gigantic pocketbooks.  I have no idea how she kept hers so neat except that she probably didn’t have as much candy and kid junk in her bags.  But Ganny liked all sorts of book – including the occasional I would say trashy romance.  So there was a time that I picked up The Other Boleyn Girl on a flight and thought what in the world is all this sex and craziness?  Such is the reaction when you grow up reading the Christian versions…  However, now in this stage of life when such things cease to surprise me anymore, I have found a new at least so-so feeling towards this author that blends history and romance.

My brother Caleb just earned his history degree from the University of South Carolina and his last paper was on Richard III – interesting guy.  This is the Richard portrayed in Gregory’s book The White Queen and the one who may or may not have murdered the two princes in the tower.  I know I’ve lost half of you now, but I promise to get to the rambling point (some of you are like – dude this is how she preaches – she just needs to get to the point).  Anyway, I hated that book in a lot of ways.  Loved the romance, loved the survival, but hated it for that mother to lose her children like that and her husband and all that yuck.  In the meantime though I picked up another one of her books, The Constant Princess.  This one is about Katherine of Aragon.  Interesting story.  I’m less than 150 pages into it and I already want to stop reading it because at this point everything’s happy and knowing the little bit about British history that I do, it ain’t going to be happy long.  What I got though for this time and in this place is that this lady and many before her knew how to survive.  She’s a daughter of Queen Isabella and King Ferdinand and much of her identity is that she is this royal princess that’s going to kick butt.  (Okay Renee I know you don’t like when I use butt, but it is what it is.)  This queen stuff is crazy and I wholly believe that this whole royal thing in these books is crazy and that the whole business was completely dirty, but I think about what my brother Josh writes to us in letters and what I read from in this past week’s lectionary from 1 Kings.  We are children of the Most High God.

We are children of the Most High God.  That’s not a phrase that I’ve particularly jived with over the years, but it’s growing on me in this context.  This doesn’t mean that I’m going to start walking around with a long train and royal septer, I want to say bahahahaha to that.  But it does mean that I can do this.  I am a child of God and that’s all I have to be.  period.  Philippa Gregory may not speak to you and heck she may not speak to me again, but I think it’s absolutely amazing that we have a God that is not someone that looks at us from afar but is a God that gets messy and personal and in the mix with us and somehow in the midst of our insane little worlds breaks in and gives us what we need to keep going, no matter how random that may be.

Don’t know if I’ll finish the book but I got what I needed for the journey.

Posted in Campus Ministry, Faith, Family, Music

It’s good to be.

It’s good to be at Wesley.  In my little universe.  Catching up on email and listening to my itunes.  Songs from Dawson’s Creek soundtracks.  Bahahaha….and all sorts of things.  A couple have stood out this morning.  Amy Grant’s Better than a Hallelujah http://www.youtube.com/watch?v=zOHJghBU0XA

is one of them.  By the way – I own all the music I post.  Not the youtube videos of course, but just sayin – support your musicians people.

I also love Tom Conlon’s music.  His Emmanuel  is one of my favorite songs and always makes me think of my ordination.  I also love this one that to many says a lot about church – God doesn’t reside in a church but God resides in God’s community here on earth.  Such simplicity and such power.  Here’s the video of it http://www.youtube.com/watch?v=97twloqVygE

  Here’s one called Old Town that he did at Wesley http://www.youtube.com/watch?v=Ta0wrIZWc9A&feature=related

I reconnected with one of my best friends this morning and it almost brings me to tears even writing about it.  There’s something about shared experience!  She and I used to eat these awesome rolls from the restaurant Hop’s.  They’re much like the ones at California Dreamin’ but better.  That’s what the title of her email was this morning and not even seeing the name – I knew who sent it.  There’s something about the breaking of bread and shared experience.  Something far more powerful than we can encapsulate or wax eloquent on this side of life, but to me that’s the importance of breaking bread.  My favorite bits of ministry and of this walk of faith in general has been around the table whether growing up with covered dish dinners (my favorite – you can’t beat the desserts) or sharing around the dining room table at Clairmont Religious Life and talking about Lord knows what or sharing in communion around our coffee table at Wesley.  It’s the food for the body and the soul.  God loves you.  God forgives you.  Supper’s ready!  Thanksgivings for all of the meals I have shared along the way with so many people and thanks to the one who sustains us each step of the way with the morsels of hope, love, and peace that keep us keeping on.  I am grateful.

Posted in Family, Health, Music, Tumor

Not going for that annual quite yet…

Hi y’all!  So as always there are highs and lows in a day.  (Can’t decide whether watching The Bachelorette right now is a high or a low…much better on fast forward to the decent parts.)  Mike and I dropped off the CD of the previous MRI/CT Scan at the neurosurgeon’s, I got a quick lesson on all this brain stuff from a wonderful Emory friend, and our GPS got us to Carolinas Medical Center.  I’ve never been to the real one – just having babies at the one in Pinevile.

We parked way far away because we had no clue where to go but we finally figured it out and it made for a beautiful day to walk.  Filled out some more forms and then got to talk to the anesthesologist and a nurse.  I’ll get to the hospital at 11:15 am and they’ll take all of us up to the 5th floor and get them settled in the waiting room, will bring me in, I’ll get to see everyone one last time, and then we’ll begin.  They’ve blocked out the room for up to three hours.  I should be in the neurointensive care for at least one night and then in the hospital 3-5 days.  Okay.  There we go.  So then giving a couple more tubes of blood, we were back in the sunshine.

Time to hit up Rock Bottom Brewery.  Completely randomly they sat us in the same booth that we were in over 9 years ago when we talked to Mike’s parents about us getting engaged and began wedding planning with them.  Oh, ironic.  In the midst of this I get a phone call and it’s not a number I recognize and let me tell you – we are screening some calls these days.  So Mike answers “Narcie’s phone, Mike speaking” and I think okay he’ll probably be on there for a while but quickly he hands it over to me and whispers “OB-Gyn.”  I’m thinking what in the heck do they want at this point?  And the very nice lady says, Mrs. Jeter you haven’t scheduled your annual appointment yet.  I know I probably should have just penciled it in to the looming calendar that I had in my pocketbook but I couldn’t help myself and said – welp, I was told a week ago I have a brain tumor and they’re operating on it on Friday and I don’t think I’ll be getting to that appointment any time soon.  LOL.  We both had a good laugh.  She said to call back any time.  It’s important – keep in good health people – but not in the scheme of things right now.

I didn’t realize until today being in there that my life is going to change for awhile.  I mean I’ve had that realization in pieces over the past week and a half but Mike and I also decided at a certain point that I needed to live my life as normally as possible.  In the midst of that though I’m now thinking oh wow what do I need to do before Friday?  We went and bought some books and some toys for Enoch and Evy for the days to come.  I got to play with the kiddos in the bath tonight and put both of them to bed.  Mike asked the nurse today if when I come back home, I can really come back home.  In other words – in our world here there is no rest, Mommy napping, etc.  There is Silly 1 and Silly 2 – my two wild and crazy E’s.  She said we’ll have to ask the doctor.  Should be interesting.

Tomorrow Enoch will go back to school, Evy will have our 16 month check up, and I’ll do some work at Wesley for one of the last times before Friday.  Then we’ll head to MRI land and will see what Presbyterian Hospital looks like.  This has been a sort of weird medical scavenger hunt.

Earlier I posted one of my favorite Laura Story songs.  I actually like most of her new CD – great stuff!  One of my all time favorites of hers though was when she was with Silers Bald and it’s called “Grace.”

  Glad that we can start each morning with mercies anew and grace afresh!  Check it out…http://www.youtube.com/watch?v=-FribXzqHVE

Posted in Campus Ministry, Faith, Health, Music, Tumor

What to do today…

So I’m sitting at Wesley with a million and one things to do and that’s what I love about my job.  However I’m just sitting here eating peanut m&m’s and am thinking how wonderful all of you are to be praying for me.  I kind of don’t want to let any of the surgeons or medical people know about all this because feel the pressure!  =0)  It’s completely surreal that this is happening and that there are facebook groups being created to pray for me.  This can’t be my life.

But it is, and in the midst of everything I feel y’all’s love and support hugely!  It’s been great to catch up with friends from high school and college and grad school and my work at Emory and all of my wonderful Winthrop folks.  One of my favorite messages is from my friend Jan who I met while working in Religious Life at Emory.  Jan is Jewish and wonderful!  She said she’s sending up some Jewish prayers!  Hey if God’s chosen people are praying – tee hee….  The thing that is wonderful is that I love all of you.  Each of you has touched my life in intricate ways and this tapestry of love that is being created around me is powerful.  Again, no pressure doctors.

Just want to give each of you a hug.  One more hour of work before time to go give a copy of the MRI/CT Scan CD to the neurosurgeon.  Oh yes – there are pictures of my brain and the tumor on the CD.  If I could figure out how to post them I would, but I don’t have those mad kind of computer skills.  For some people it helps to see it and wrap the mind around it (it made me feel better like I wasn’t crazy for having a seizure and falling out of a bed randomly) but then padre didn’t feel better after seeing it – totally understandable.  So back to work and then off to deliver some pictures and find out what I need to do for pre-op!

  Love this video.  And her story.  And that she’s from South Carolina.  Check it out http://www.youtube.com/watch?v=e00JWpre67U.

Posted in Faith, Family, Health, Music, Television, Tumor

MTV Movie Awards

I am totally not telling you to watch them because they are rather disturbing this year and there are so many things being bleeped out that you can’t understand half of it but it is pretty funny.

Mike walked in earlier and he’s like “What are you smiling at?” Guess I haven’t done that much today, and I’m like “They’re giving an award to Sandra Bullock and they’re showing clips from her movies.” So we got sucked in. Although now he’s flipping back and forth between hockey and basketball. It’s a night with absolute nothing on tv and all sorts of things to watch on tv all at the same time.

Thank y’all for the prayers! It had to be prayer that got me through this morning. I totally didn’t crash until after church and I know that had to be prayer so thank you!

The rest of the day today and yesterday has been good – hanging out with the kids, going to the park and the pool and watching Enoch play with his new trains, and watching Evy in her new dresses and bows. It’s been good. And there’s been great food (Mike’s grandmother sent chocolate-covered strawberries – who could ask for better?).

I know this is going to be a crazy week with highs and lows and it’s all going to be fine, but I’m tired and it’s a tired day. Enoch has been staying up til all hours of the night not wanting to sleep, don’t know if he feels the energy in the air or if he needs to not ever take naps anymore!

So not much to report in Jeterland today. Tomorrow begins the week of craziness and thankfully the kids will begin summer preschool in the morning so here’s to a good start for them! Thank you all for the prayers and support! I am deeply humbled, overwhelmed and hugely thankful for them. Much love!

Posted in Culture, Faith, Family, Music, Television

Blest Be The Tie That Binds

So I love this old hymn.  We sang it at the end of every worship service when we were at Wesley Chapel in Lydia and it was played at my Gandaddy’s funeral with Ganny’s alto voice ringing out as always.   It’s not the greatest sounding recording, but it’s about like I remember in UMC’s with a bunch of different voices and a lot of joy in the harmony and singing out as loud as you can even if you’re not the best singer in the history of the world.  The second video – different tune but also familiar and I think the images are cool with the words. Go to http://www.youtube.com/watch#!v=9OfSm2LfX48&feature=related.

What is the tie that binds us?

Love that great cloud of witnesses always before us (can’t help but mention the LOST finale) and that great community of Christ followers that is ever behind us, beside us, and before us.  Love, love, love that in this crazy blog system that people’s posts look like patches in a quilt.  God is sewing community together all around us and that is beautiful.

Posted in Culture, Faith, Family, Health, Methodism, Television, Tumor

Everybody Loves Raymond

So the episode is on right now when Raymond gives Debra the “happy pills” to take care of her PMS. It cracks me up every time. I know some people are not fans of the show but when there’s nothing on TV like there’s not really tonight and you want a little amusement – this works.

We had a great 3rd birthday for Enoch tonight! And we’re all pooped now. GiGi picked up a great dinner from Sahara (a Mediterranean restaurant in Rock Hill that we hope will make it because it’s delicious!), the Choo-choo cake was ready to go and Mac Mac and Uncle Josh put together the new wagon. Grammy even gave the kids a bath. I don’t think Enoch could decide which gift he liked more or which ones he wanted to sleep with – the choo choos, guitar, or fish game and finally with the reading of a story, he went to sleep. What a day/night!

To keep you updated with the latest in doctor land, we went to see the neurologist today. Nope, he is not the same as the neurosurgeon, although I never knew those were the same, but hey what do I know? So several pieces of paperwork filled out (I am so excited about the technology being created where all of your medical info is in one place, I can even begin to contain my hope – we need to all invest in it.) and lots of questions later, we ended up with more appointments.

I know that all of these doctors/medical folk need answers and that they’re hearing it for the first time and I should be nice and tell them the whole thing again, but part of me wanted to say – read the blog. Or read the chart. Or communicate with the others. No, I don’t remember if one side shook more than the other. Nope, I don’t think one side was slower than the other probably because I landed on one side. Nope, I haven’t had any seizures before. Sure I can close my eyes and put my arms out and touch my nose with my fingertips (I have now done this for three doctors.)

I am thankful for these questions because I know they need this info and thorough is good. But boy is it frustrating. A friend of mine called shortly after and I was telling him that I think our insurance is going to hate me and he very hilariously said that by the end of this I’m going to be for Obama-care. (No I do not want to debate this and I love you but I don’t want a gazillion op-eds on healthcare reform.) It just made me think a lot about the privilege it is to be able to go to all these different people and have them each treat me. I mean this thing happened a week ago right now. A week ago possibly from this very moment and I’ve been to an er, done a gazillion tests, been driven back to SC by an amazing Edward, been supported and loved by family, been hugely humbled and amazed by the support and prayers of a larger community than I knew existed, gone to see a neurosurgeon and a neurologist. Everyone doesn’t have support like this. Everyone doesn’t have care like this. And I’m complaining about filling out forms. And I am still complaining. It’s annoying. But at least I have that opportunity. I feel like I’ve got so little answers to give but what if I had absolutley no info or answers and I hadn’t even seen anyone yet?

So what do we know today – the neurologist here likes the seizure meds that the neurologist in Virginia gave me so he gave me some more refills on that. He reminded me about the 6 months no driving thing (that still sort of stinks). And he scheduled a sleep deprived EEG for the end of June. What is a sleep deprived EEG you ask? Well, apparently I go to bed at 10 pm and wake up at 2 am and then stay awake without drinking caffeine or eating chocolate and then I go get an EEG at 7:30 am. What that is checking I have no idea, but that’s where I’ll be early in the morning on June 26th.

The only other new info I have is that I got the folder for pre-op, op, and post-op today. Now that is exciting. Still haven’t looked up what this surgery is exactly but a wise nurse friend told me that it would be better to read what it is after the surgery than to gross myself out before. So pre-op on Monday, MRI and functional MRI which apparently has cool colors on Tuesday, and surgery on Friday.

I’m telling you I love this show. Marie just said, “Frank we’re having company.” And he answers, “They better like swearing.” LOL. I like this show because it’s real. And I love y’all my massively amazing community because you’re real. I love that your joining together across the web for the simple fact that I love people being community together but also because it makes me happy that our “connection” is alive and well. I’m not just talking about the United Methodist one although you know I believe that too, but I’m talking about the connection of people of faith, that belief that there is a different world possible. The hope that if we all could unite together we could change our worlds – one can of soup or smile or vote or radical choice at a time.

It’s the life – the every day – the Everybody Loves Raymond moments that are the meat – the good stuff. These are the things we cherish. These are the opportunities that we take for granted but we should be oh so thankful for. The times that we let loose and were our real, God created selves, warts, tiaras and all.

So may we find grace in the little things. May we see the marks on the walls, the scuffs on our shoes, and the grooves in our paths not as just tired wear and tear but as the everyday treasures of grace, hope, and keep on keepin’ on that make it all worth it! Praise God that it’s not all smoothed out and clean – how boring would that be! Will continue to keep you posted. Thanks for the prayers! Keep rockin it out!

Posted in Faith, Family, Health, Music, Television, Tumor

So if life were a musical

Scratch that.  Maybe I should use sports imagery.  Maybe this is like halftime.  Or back to the musical this could either be the orchestra warming up at the beginning of a full and fabulous Broadway show or this could be the intermission music.  Either way all’s quiet on the home front.  The kids went to bed reasonably early tonight.  Mike is asleep already – praise God!  And GiGi (Mike’s mom) has arrived safe and sound.

Tomorrow we pick up Enoch’s 3rd birthday cake, some last minute birthday gifts, and we’ll stop by the neurologist.  The MRI has been moved from Saturday to Tuesday and the anesthesiologist appointment is now on Monday.  So after tomorrow’s neuro there’s nothing on the appointment horizon until Monday which freaks me out a little bit but also makes me want to randomly go somewhere that’s not sitting on my couch waiting for Monday.  So is the orchestra gearing up or will it spend all weekend gearing up or better yet in this not completely working analogy – are we going to play a completely different show this weekend – ie. the birthday extravaganza, everyone enjoy life and try not to freak out dance?

In reading people’s posts on the blog and facebook and comments and everything I’ve felt a wide range of emotions.  I’ve cried and laughed out loud.  Part of me wants to start doing the whole Wicked

“Because I Knew You” as I think about so many different people from so many different places and all of the many ways I love each of you and you have touched my life in real and not so cheesy ways.  Another part of me is still just happy to be alive in general and I’ve not been able to get David Crowder’s “O Praise Him” and the video that someone posted months ago out of my head. 
  I’m not a total David Crowder fan – I admit that – but I do lift this song/video.

Also – please don’t read this blog or any blog for that matter and think that anyone has anything all figured out.  That’s crap.  No one of us has the in track to faith, theodicy, or the mysteries of life – much less who the smoke monster really was – but we do serve a God who blesses far beyond our wildest dreams and you guys are that blessing for me.  So if life were a musical what would be your song?  Glee people – what would be your soundtrack?  What is that go to music for you that makes your soul come alive?  The dear friends that light up your life?

We’re cranking up the music this weekend and there won’t be any electric slide at this three year old’s birthday party!